Seeking Alpha

As more rare disease therapies launch, their prices are rising

Therapies that treat rare diseases are among the most expensive treatments for patients, with price tags often reaching seven figures. Despite their high price, the treatments are usually lucrative ...
Benzinga.com

Median Drug Prices For Rare Diseases Hit $300K In 2023, Report Highlights Lack of Clear Rationale Behind Escalating Drug Prices

In a significant trend, pharmaceutical companies in the U.S. introduced new drugs last year at prices 35% higher than in 2022, notably attributed to the industry’s focus on costly therapies for rare ...
Washington Examiner

Parliamentarian reverses course on rare disease drug price provision in tax bill

A provision protecting expensive medications, used to treat multiple rare diseases, from the Medicare drug price negotiations made its way back into the GOP budget reconciliation bill after a ...
AOL

Prices for new US drugs doubled in 4 years as focus on rare disease grows

(Reuters) -U.S. prices for newly-launched pharmaceuticals more than doubled last year compared to 2021, as companies leveraged scientific advances to develop more therapies for rare diseases, which ...
Penn Live

Congress has the power to protect patients with rare diseases from price gouging | Opinion

I’ve experienced firsthand the uphill battle that parents of children with rare diseases endure. The search for knowledgeable, compassionate care can feel like an endless maze—isolating, exhausting, ...