I always assumed my chronic fatigue would go away after starting Trikafta and getting through the newborn stage with my twins. But, when it didn’t, I realized I needed to rethink my approach to ...

When I fell into a health insurance nightmare after my lung transplant, my husband and I decided to move to his home country — England. Now, 10 years later, I feel like I float somewhere between the ...

Before my son was diagnosed with cystic fibrosis, my life lacked a profound sense of purpose. I did the typical routine a wife and a mom of three does. When I did have time for myself, I’d upload ...

Parenting a child with cystic fibrosis is very new to me and my partner, Ryan. Our daughter, Audrina, is 6 months old and was diagnosed with CF shortly after birth. Audrina’s experience with CF has ...

I was born in 1983, beginning my lifelong journey with cystic fibrosis. My early days were fraught with challenges. I had a swollen abdomen at birth, struggled with failure to thrive, and suffered ...

I am a part of the approximately 10% of people with cystic fibrosis who are unable to benefit from or tolerate modulators such as Trikafta ® and, every day, I position myself to advocate for research ...

The Indiana Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.

The Southeast Florida Chapter - Palm Beach Office (serving Greater Palm Beach, and The Treasure Coast) of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the ...

The Tennessee Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter covers East, Middle and Southeast Tennessee. Volunteers are the key to our success and the lifeblood of our ...

Who Needs Vascular Access Devices? Vascular access devices may help people with cystic fibrosis who need intravenous (IV) antibiotic treatments for more than just a few days, such as during an ...

Clinical Pilot and Feasibility Awards are offered to support projects involving human subjects (see 45 CFR§46.102(f)) that will develop and test new hypotheses and/or new methods (or those being ...